NI dad Chris Brannigan to trek another 1200 miles barefoot to fund gene therapy for daughter

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    NI dad Chris Brannigan to trek another 1200 miles barefoot to fund gene therapy for daughter
    By Belfast Telegraph


    British Army Maj. Chris Brannigan said he will take any step necessary to raise awareness about the relatively unknown genetic condition, Cornelia de Lange syndrome, from which his 9-year-old daughter Hasti suffers.

    Even if that means taking some 2.5 million steps barefoot, in what he calls “a race against time” to develop therapies for the disease. He plans to walk the equivalent of a marathon every day, passing through York County, Maine, and Seacoast New Hampshire along the way.

    Brannigan recently started his 1,200-mile charity walk barefoot from Maine to North Carolina carrying 55 pounds of his army gear, including his tent and food, to raise awareness and money to support clinical trials for a gene therapy treatment for Cornelia de Lange Syndrome, or CdLS.


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