More surgery for me!

Thank you all for your well wishes! They mean a lot.

More bad news. It looks like I have 5 to 6 neuromas (3 to 4 of them being stumps). There are 2 more right at the phalangeal joint just before the 5th metatarsal, or it's an entrapped nerve. My massage therapist uncovered it and worked the hell out of it, but it's not doing any good. I just pressed on the one in my left foot this morning to see how it was doing, and that set off so much MN and PF pain all day long.

Good news. This might be the nerve that has been causing all my plantar fasciitis pain over these past 3 years.

This is just am excerpt from the nice long email Dr. Dellon sent me, but it sounds promising? o_O


if you read the Morton's Neuroma chapter of my book, Pain Solutions, then you know
1) you need an incision on the bottom of the foot for me to remove the stump neuromas and implant them into the arch
2) 75% of people like yourself also have entrapment of the tibial nerve and its medial and lateral plantar nerves, which prevent the interdigital nerves from healing properly after traditional MN surgery, and entrapment of the calcaneal nerve, which is likely the source of your heel pain I just knew it! I have had this feeling that a nerve was at fault for my PF, but I didn't understand enough about it, I guess. How the hell can someone NOT heal from Plantar Fasciitis when they have hardly moved in the past year!
3) the neurosensory testing with the PSSD done in our office can help with these diagnoses

and he went on with some more notes.
 
Another thing, I have read research and now have a research article co-written by Drs. XXXX and Michael Carroll, DPMs (published in the Journal of the American Podiatric Medical Association) who have identified a connection to the Hyperparathyroidism I dealt with for countless years, before having the tumored parathyroid removed, and subsequent deposits of calcium crystals (gouty arthritis) in my hands and feet (which have no doubt made the MN (and PF?) difficult to overcome). SEE!!!! I AM NOT CRAZY! And what's really cool?!?!?!? I didn't even know Dr. XXXX then!!!!

Journal of the American Podiatric Medical Association • Vol 97 • No 3 • May/June 2007 245
Celebrating100years of continuous publication:1907–2007
CLINICAL CORRESPONDENCE
Atypical Gout in the Foot and
Ankle Secondary to Primary
Hyperparathyroidism

To the Editor:
It is well established that primary adenomatous hyperparathyroidism
is associated with hyperuricemia
and overt gout.1-5 Awareness and early diagnosis of
primary adenomatous hyperparathyroidism is important
because the condition can lead to a host of problems,
such as kidney stones, diminished bone density,
fracture, gastrointestinal symptoms, mood disturbances,
fatigue, and nonspecific neurologic or musculoskeletal
complaints.6, 7 Furthermore, recent evidence
suggests that hyperuricemia may be a risk
factor for increased morbidity and mortality in cardiovascular
disease,8-11 stroke in the elderly,12 fetal
risk in women with gestational hypertension,13 and insulin
resistance.14-16
Case Report
A 41-year-old, 5 foot 9 inch tall man weighing 225
pounds presented to our Merrillville, Indiana, office
with a 2-year history of diffuse pain and swelling in
his left midfoot, rearfoot, and ankle. The pain worsened
with weightbearing. The patient had previously
been prescribed custom-made foot orthoses by two
podiatric physicians, but these orthoses failed to alleviate
the pain.
The patient’s medical history was significant for
kidney stones, which were treated with lithotripsy,
and gout. He was allergic to penicillin and insect
stings. He denied tobacco or alcohol abuse, and he
was not taking any medications.
The lower-extremity examination revealed nonpitting
edema of the left midfoot, rearfoot, and ankle.
Pain was elicited on palpation of the midfoot and
rearfoot dorsally, the ankle anteriorly, and the plantar
aspect of the heel. Radiographs showed edema and a
possible osteochondral defect of the ankle. Magnetic
resonance imaging and computed tomography scans
of the ankle, rearfoot, and midfoot were ordered. The
radiologist’s report described edema and a large,
well-defined radiolucent lesion involving the medial
talar dome with the possibility of internal calcification.
The report also described subchondral cystic
and erosive changes in the distal tibiofibular articulation
and prominent subchondral radiolucencies involving
the mid–subtalar joint, the anterior aspect of
the calcaneus, the second tarsometatarsal joint, the
second cuneonavicular articulation, and the cuboid.
The joint spaces were described as being relatively
maintained. The findings were consistent with gouty
arthritis or amyloidosis (Figs. 1–4). The results of a
Figure 1. T1-weighted magnetic resonance image
demonstrating lesions in the calcaneus secondary to
severe gouty arthritis.
Figure 2. Sagittal T1-weighted magnetic resonance
image showing lesions in the talar dome and subtalar
joint secondary to severe gouty arthritis.
Figure 3. Frontal T1-weighted magnetic resonance
image displaying lesions in the talar dome and subtalar
joint secondary to severe gouty arthritis.
Figure 4. Frontal T2-weighted magnetic resonance
image showing cystic changes in the talus and calcaneus
secondary to severe gouty arthritis.
246 May/June 2007 • Vol 97 • No 3 • Journal of the American Podiatric Medical Association
Celebrating100years of continuous publication:1907–2007
Bence Jones urinary protein immunofixation test
were negative, and the serum uric acid level was 10.7
mg/dL (reference range, 3.8–8.1 mg/dL). The complete
blood cell count and renal function test results
were within the reference ranges.
On the basis of the atypical gout presentation, tests
for intact parathyroid hormone and calcium were ordered.
The parathyroid hormone level was 637.0
pg/mL (reference range, 12–65 pg/mL), and the calcium
level was 12.0 mg/dL (reference range, 8.7–10.1
mg/dL).
A parathyroid localization scan showed focal moderate
uptake in the right lower neck, consistent with a
parathyroid adenoma. The parathyroid adenoma was
surgically excised by a general surgeon. The patient
was seen in our office 27 days after the adenoma’s excision
and reported that his foot and ankle pain had
resolved.
Conclusion
The foot and ankle may be the first area to show
symptoms of a parathyroid adenoma. Early discovery
of this tumor can limit or prevent the development of
other debilitating medical problems that could ultimately
result in death. This case reveals the importance
of thorough evaluation of patients who have
high serum uric acid levels in order to discover causes
of gout in the foot and ankle. Especially in atypical
presentations of gout, the possibility of a parathyroid
adenoma should be considered.
Financial Disclosures: None reported.
Conflict of Interest: None reported.
MICHAEL S. XXXX, DPM
MICHAEL C. CARROLL, DPM
50 West 94th Pl
Crown Point, IN 46307
References
1. SCHLESINGER N: Management of acute and chronic gouty
arthritis: present state-of-the-art. Drugs 64: 2399, 2004.
2. MINTZ DH, CANARY JJ, CARREON G, ET AL: Hyperuricemia
in hyperparathyroidism. N Engl J Med 265: 112, 1961.
3. SCOTT JT, ST. DIXON A, BYWATERS EGL: Association of
hyperuricemia and gout with hyperparathyroidism. BMJ
1: 1070, 1964.
4. NELSON JK, HADDEN DR: Thyrotoxicosis, hyperparathyroidism,
and hyperuricemia. BMJ 2: 213, 1966.
5. SMYTH CJ: Disorders associated with hyperuricemia.
Arthritis Rheum 18(suppl): 713, 1975.
6. SHANE E: “Hypercalcemia: Pathogenesis, Clinical Manifestations,
Differential Diagnosis, and Management,” in
Primer on the Metabolic Bone Diseases and Disorders
of Mineral Metabolism, ed by MJ Favus, p 183,
Lippincott Williams & Wilkins, Philadelphia, 1999.
7. MEYERS OL, CASSIM B, MODY GM: Hyperuricaemia and
Journal of the American Podiatric Medical Association • Vol 97 • No 3 • May/June 2007 247
Celebrating100years of continuous publication:1907–2007
gout: Clinical Guideline 2003. S Afr Med J 93: 961, 2003.
8. GAVIN AR, STRUTHERS AD: Hyperuricemia and adverse
outcomes in cardiovascular disease: potential for therapeutic
intervention. Am J Cardiovasc Drugs 3: 309,
2003.
9. ANKER SD, DOEHNER W, RAUCHHAUS M, ET AL: Uric acid
and survival in chronic heart failure: validation and application
in metabolic, functional, and hemodynamic
staging. Circulation 107: 1991, 2003.
10. JOHNSON RJ, RIDEOUT BA: Uric acid and diet: insights
into the epidemic of cardiovascular disease. N Engl J
Med 350: 1071, 2004.
11. BAKER JF, KRISHNAN E, CHEN L, ET AL: Serum uric acid
and cardiovascular disease: recent developments, and
where do they leave us? Am J Med 118: 816, 2005.
12. MILIONIS HJ, KALANTZI KJ, GOUDEVENOS JA: Serum uric
acid levels and risk for acute ischaemic non-embolic
stroke in elderly subjects. J Intern Med 258: 435, 2005.
13. ROBERTS JM, BODNAR LM, LAIN KY, ET AL: Uric acid is as
important as proteinuria in identifying fetal risk in
women with gestational hypertension. Hypertension 46:
1263, 2005.
14. YOO TW, SUNG KC, SHIN HS, ET AL: Relationship between
serum uric acid concentration and insulin resistance
and metabolic syndrome. Circ J 69: 928, 2005.
15. COHN GS, KITTLESON MM, BLUMENTHAL RS: Toward an
improved diagnosis of the metabolic syndrome other
clues to the presence of insulin resistance. Am J Hypertens
18: 1099, 2005.
16. WEISZ B, COHEN O, HOMKO CJ, ET AL: Elevated serum uric
acid levels in gestational hypertension are correlated
with insulin resistance. Am J Perinatol 22: 139, 2005.
 
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TJ, every time I read one of your posts about your feet I am so thankful I have the knowledge to teach my family and friends about proper footwear and care.

I hope next time we read about one of your foot injuries it is because of TMTS, and not some issue caused by footwear. I look forward to the day we can all start reading your race reports. :)

Good luck!
 
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Thanks. I would LOVE to write a race report. Honestly, if this surgery doesn't work, I don't know what I will do. I really don't. I don't want to end up in a wheelchair. I am so scared.

But you know, I've talked to myself a lot about this, and I told myself I will not ask "Why me?" I will instead say, "Why not me?"

Yes, please let my choices in bad footwear be an example to all what could happen to them, although now I am believing a lot of my problems were also set into motion by my past physical/medical problems.
 
Getting to this late but sending you all my very best wishes.

Just went for a run and was getting in a temper about how uncomfortable it was underfoot - then I remembered how lucky I was to be able to run at all, and it became a game.

Believe it or not, I did think of you. Then I came and caught up with news here, and see this.

You inspire; I wish you recovery.
 
Best of luck TJ, I know you will come out of this stronger than ever, and the world will be a better place for it, because we need our TJ (preferably 'Non-Doped' around here.

Sending lots of positive vibes your way and you will be in my thoughts on Aug 28.
 
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Knowing more now about the relationship between your symptoms and prior health history you have every reason to remain optimistic for a good outcome.
It'll only be a matter of healing time and you will be on the road to a full recovery.
 
SEE!!!! I AM NOT CRAZY!
Absolutely! Always good to remember that any health concern that falls outside the norm, does not mean that you're crazy. It means that modern medicine or the doctor doesn't understand the condition. It's all cells, tissues, organs that must follow the laws of physics, even for chronic pain and mental health conditions.

If it's bad Juju, then talk to Bare Lee. Maybe he can point you in the right direction...
 
And the doctor wrote to me again this morning; we are writing back and forth.

with regard to the hyperparathyroidism, which is quite interesting to me
1) did you know there is a neuropathy associated with that and that may be why you have continuing problems with the feet, and the neurosensory
testing in our office will help with that
2) please send me X-rays of your feet so I can see if the 5th toe pains are related possibly to the calcifications

So HERE I can FINALLY get a diagnosis for neuropathy; whereas I couldn't from the lame-brain neurologist back in May. sigh! Not that a diagnosis means much unless you can do something with it, but it helps me tremendously just knowing I'm not a nut job.
 
TJ, I'm sorry you had to go through this, but I'm glad you found an expert who sees things holistically. Best of luck to you.

I can't wait to hear about a long, long series of successes that lead to a happy, comfortable, regular running pattern that you can sustain for years and years.
 
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Better late than never, but best of wishes, good energy, prayers, juju, and all the rest.
You've got a pretty big rooting section =)
...you can be sure that what ales you is not due to lack of moral support!

Wishing you a quick and healthy recovery, you so deserve it!!
 
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That is absolutely beautiful, PJ. Thank you! Sometimes I think He's leading me on a course all my own.

I mean with the BRS and everything. I just shared this with my buddy Anna from the UK. I hope it says it all.

Oh well, like I told the BRS guys, I'm not going to ask Why Me? I am going to ask Why not me? I'm just trying to find out the Why not me part though, like what am I to do with it? I've started the MN Talk forum, so maybe I'm being pulled there. Who knows? It's all so crazy. Here MN brought me to BFR and now it may just be what takes me away from it. I always told people I thank God for Morton's Neuroma for without it I never would have discovered running barefoot. But now I question my sanity. Ha! I still do praise God, of course. How could I not? You all have been a blessing to me in so many ways. The relationships I have formed over the internet are precious to me. Some of my best friends are people I've never even met.
 
TJ: You encourage me that you are running to Him rather than from Him during this hardship. I admire your trust, faith, and courage through it. Your new avatar seems to be appropriate as you are running down a road and cannot see past the horizon. One thing I know: He is present with you.
 
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